PCOS Update: It's been almost 4 months...

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So, back in July, I wrote about how I was diagnosed with PCOS after not going to the doctor for 3 years. Well, it's been almost 4 months, so it's time for an update. 

Sigh. It was a rough summer. It took a lot of time to adust to my new meds. Metformin, which is actually a diabetes medication but works very well to help tame some PCOS symptoms, is known for it's wreaking havoc on digestive systems. Ugh. It sure wrecked mine. 

And actually, it's been really annoying. My fasting glucose is actually HIGHER since being on the metformin! I was not prediabetic before, but I'm borderline now according to my fasting glucose levels taken from my meter. I have not had any more bloodwork done yet though so I'm not sure how my fasting insulin or fasting A1Cs are. It's so weird that my fasting A1C and fasting glucose levels were perfect, but my fasting insulin was VERY high. The joys of PCOS... 

I have a whole list of prescriptions and supplements I take now. It's pretty ridiculous. I take some supplements for helping control my blood sugar levels, others for controling symptoms of the PCOS, and several for controlling allergies and inflammation. I also have to continue to take iodine, vitamin B, and vitamin D supplements since my levels were low on those as well. 

I tried the Keto diet, and it really messed me up.... no, I'm not talking about the keto flu, although that was no joke either. After I got through the keto flu, I had BAD stomach pain and even developed mild pancreatitis. I didn't need to go to the hospital, but once I got out of ketosis, I felt a little better. 

Since then, I've had a myriad of digestive issues. I have pain in my upper abdomen nearly all the time, and it's worse after I eat. Some days, I spend half the afternoon in the bathroom. I had an appointment with a GI (gastro-intestinal) doctor earlier this month, and I'll write more about that later since that's been a whole other experience... 

I was very frustrated when I went to see my family doctor about my pain. I had done a TON of research about my symptoms and most everything pointed to pancreas or gallbladder issues and I needed to see a doctor ASAP. So, I finally saw my doctor (not the hormone specialist since it was urgent and I didn't want to wait for her to come back to town), and pretty much as soon as I said "abdominal pain," she said I needed to see a GI. Ugh. Annoying. The family doctor had NO IDEA what was wrong but said it "couldn't be gallbladder issues because I was still standing upright and not doubled over in pain." ummmmmm, that's not how it works, thanks. Even *I* know that. I was very frustrated and felt like I wasted my time. Of course, I'm not sure if my insurance requires a referral or not, so at least I have that referral now. SO ANNOYING. 

After I made the appointment with the GI, my pain in my upper left abdomen got worse and I started having pain in my upper middle back as well as aches just below my solar plexus too. Guess it was good I made the appointment when I did. 

I've been experimenting on what foods give me what digestive issues and it's so weird. It does seem that higher fat meals give me problems, which I guess points to the gallbladder. Gluten does not seem to be an issue, and I have tried very high fiber days and very low fiber days, and the fiber does not seem to make a difference either. 

In any case, if it's the gallbladder, pancreas, spleen, stomach, intestines, or a combination of the above, a GI has to take care of it. I have also heard that it's very common for women with PCOS to have gallbladder issues too... something about the elevated estrogen levels being more likely to cause gallstones and mess with the amalyse and lipase levels... 

So that's where we are. I actually feel worse since my first appointment. I have lost over 20 pounds and for awhile, I had eliminated sugar from my diet (when the digestive issues started, they got so bad that I just had to eat SOMETHING that wouldn't bother me...). My hair is falling out worse than before, too. I'm also hungry all the time and nauseated most of the time. Plus, I am TIRED. TIRED TIRED TIRED. 

I hope to get some more answers soon. I'm scared I'm going to need surgery, but if it will help, I don't want to have any other attacks... 

I can't think of a question to ask, so just tell me something interesting. I need a distraction. 

Categories: Health & Fitness
Tags: My Family
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Comments

Ryla - October 19, 2018 1:17 PM
I feel like this might be a stupid question but is it normal for being on metformin to have their glucose to be high? I hope you have a wonderful day & thank you for the update.
Mama - October 19, 2018 3:26 PM
Metformin is given to LOWER blood glucose, so it's really weird that my fasting glucose is higher on it; however, my blood glucose after meals is lower so I guess it's working on that end...
Amanda - October 19, 2018 2:57 PM
I am so sorry this is happening to you. I have had a lot of people ask me if I do Keto or if I ever would and I always say no. I have low blood sugar naturally and if I cut carbs, I don't want to see what would happen to me! I hope they figure out what is wrong with you soon!
Mama - October 19, 2018 3:28 PM
Thanks, I hope so too. I'm not a fan of the Keto diet... I'm sure it can work for some if you do it the right way without a lot of saturated fats, or maybe a vegetarian keto? I don't know.... but it didn't work for me at all. We're all different!
Holly - October 19, 2018 4:15 PM
I am so sorry you are struggling! I hope that you get some answers soon! I will be keeping you in my positive thought and prayers!
HilLesha - October 20, 2018 12:16 AM
I'm sorry that you're going through this! This past month has been a rough for me as well, health-wise, so I can greatly understand your frustrations. Sending a lot of positive vibes your way!
Maartje van Sandwijk - October 20, 2018 3:53 AM
Sorry this happened to you! Wishing you lots of strength and hope you'll feel better soon!
Kate - October 20, 2018 4:16 AM
So sorry this is happening , I know myself how horrible it is to know that something is wrong but not knowing what is. Sending positive thoughts
angel - October 20, 2018 9:43 AM
i will be praying for you mommy. i have PCOS too and really had a hard time to get pregnant. for five long years we waited. i was on metformin while TTC, but the most important thing i have done i think, at least in my case, was i lost weight. like 15 kg.
Diana Tidswell - October 20, 2018 9:50 AM
I am so sorry for what happened and I am hoping that you found answers for all of your questions, will include her to our prayers.
Danielle - October 20, 2018 10:54 AM
I’m so sorry you are going through this. I know a few people who have PCOS and they struggle with similar symptoms that you are describing.
Lyosha - October 20, 2018 4:01 PM
It's pretty sad you have to go through this but it's fine and it's getting better and better each day
Lisa Rios - October 20, 2018 5:04 PM
That sounds rough, girl. I hope you keep doing better. :( Take care of yourself!
Clair - October 20, 2018 5:48 PM
I am so sorry that you are having to go through all of this! I can’t even imagine! I have heard about PCOS, but never about the true pain and struggles it causes. I can only imagine the frustration of trying to figure out what to do next when it comes to the GI issues and having your family doctor tell you that. I hope that you are able to get answers so that you can at least get things under control enough to not have to worry or deal with the GI issues :( On another note (for distraction purposes), I loved your ghost cottonball craft idea! Are y’all doing anything special for Halloween?
Eileen Mendoza Loya - October 21, 2018 2:48 AM
I am sending you a virtual hug! Wishing you peace in your heart and health in your body.
Vance Madrid - October 21, 2018 3:37 AM
Most of my friends who are on the chubby side have PCOS so it's quite difficult for them to bear children. But I believe there's still hope. PCOS is something that women can fight against with proper diet, medication and lifestyle perhaps. Thank you for sharing your story, women can get inspiration from it.
maysz - October 21, 2018 3:49 AM
I'm sorry to know about your condition! I hope you will okay someday! :(
Preet - October 21, 2018 8:06 AM
I am so sorry to hear about you struggling with PCOS. I have a friend who is currently in the same situation. Praying for you!
Ellie Plummer - October 21, 2018 10:14 AM
I'm sorry that you are having to go through this. I hope you get some answers soon and can find a way to deal with PCOS
Ricci - October 21, 2018 11:06 PM
I'm so sorry you are going through this!! It sucks having to wait for answers!! Praying for you!
Holly - October 23, 2018 9:30 PM
I am so sorry you are struggling, PCOS can be a very hard chronic disease to deal with and I fund that sometimes when we have something going on the doctors try to blame the chronic illness, take care of yourself...Keeping you in my positive thoughts and prayers
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